Unique, comprehensive, state-wide snapshots of prevalence and geographic distribution of sickle cell disease

A recently published paper describes the development of the Indiana Sickle Cell Data Collection program and presents the most detailed reporting on the prevalence and geographic distribution of persons living with sickle cell disease in the state. The program is one of only a handful of sickle cell data collection programs in the U.S. and is believed to be the only one incorporating data from a statewide health information exchange.